The MAP Gap Newsletter | October 2017

Read all the latest news and research about Mycobacterium avium  subsp. paratuberculosis (MAP) and the treatment of Crohn’s and other MAP-driven diseases.

Human Paratuberculosis Foundation is dedicated to providing the most up-to-date MAP information to assist healthcare professionals and patients around the world to make informed decisions about their treatment. We are grateful for the support of this community and look forward to taking this journey together.

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Consensus Article from the 2017 MAP Conference

Human Para is pleased to share the consensus article from the 2017 MAP conference in Philadelphia. This effort represents a historic collaboration of the world’s experts on Mycobacterium avium spp. paratuberculosis (MAP), who are concerned about the impact of MAP on human health. The goal of this collaboration is to advance better treatment options for patients suffering from MAP-driven conditions.

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Events

Upcoming Events May 17, 2018 Denver, North Carolina Crohn's Warrior Valerie Joly and Verdict Ridge Golf and Country Club will be hosting a Fight for the Cure Golf Tournament on May 17, 2018.  All proceeds will benefit Human Para in their quest to fund...

Educational Pack for Patients

Human Paratuberculosis Foundation has created an information pack designed with patients in mind. This downloadable pack, containing links to the latest research and resources on MAP science, can be printed or sent in electronic format. Presented in a brief, easy to read format, it provides an introduction to MAP in Crohn’s and other diseases, discusses detection rates, and sets out therapeutic options including clinical trials. A full page of additional resources follows, concluding with a short synopsis about the Human Para organization. This can be used to help you prepare to get the most out of your next visit with your healthcare professional. Understanding your condition and the latest research can increase your chances of improving and maintaining your health.

Request for Research Proposals

Human Paratuberculosis Foundation is pleased to announce that it is seeking research proposals from qualified applicants that will advance our knowledge about the role that Mycobacterium avium spp. paratuberculosis (MAP) plays in human disease. MAP has been detected in significantly higher numbers in patients with Crohn’s disease, Type 1 Diabetes, Multiple Sclerosis, Sarcoidosis, Hashimoto’s Thyroiditis and Psoriasis, and emerging research indicates that MAP may be involved in other conditions such as Parkinson’s disease, Blau Syndrome, Rheumatoid Arthritis and Lupus. It has been shown that patients with these conditions have genetic vulnerabilities which may hinder the immune system’s ability to correctly recognize pathogens, predisposing them to bacteria such as MAP.

Human Para now seeks to sponsor innovative research projects which will add to our understanding of MAP’s role in human disease. For further details and instructions on how to submit a proposal, please see the Application Instructions.

Dr. C. Thomas Dow | All Roads Lead from Crohn’s

“All roads lead to Rome” is the old axiom that described the central place the city of Rome played in its millennial world empire.  All roads lead from Crohn’s – this narrative discusses human diseases associated with Mycobacterium avium subsp. paratuberculosis (MAP) other than Crohn’s disease, including Blau syndrome, Type I diabetes, sarcoidosis, lupus and Parkinson’s disease. For our purposes these roads are trails; genetic trails.

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The MAP Gap Newsletter | July 2017

Human Paratuberculosis Foundation is dedicated to providing the most up-to-date information in our field to assist patients around the world in making informed decisions about their treatment. We are grateful for the support of this community and look forward to taking this journey together.

Read all the latest news and research about Mycobacterium avium subsp. paratuberculosis (MAP) and the treatment of Crohn’s and other diseases using Anti-MAP therapy. Enjoy!

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The MAP Gap Newsletter | April 2017

Human Paratuberculosis Foundation is dedicated to providing the most up-to-date information in our field to assist patients around the world in making informed decisions about their treatment. We are grateful for the support of this community and look forward to taking this journey together.

Read all the latest news and research about Mycobacterium avium subsp. paratuberculosis (MAP) and the treatment of Crohn’s and other diseases using AMAT therapy. Enjoy!

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The Light at the End of the Tunnel

On my way home from the 2017 MAP Conference in Philadelphia, I had to drive through a tunnel which ran underneath a mountain. Tunnels have always made me a little nervous due the confinement, but I relaxed as I saw daylight coming from a small hole on the other side. As I focused on getting to the light, it occurred to me that this tunnel was a great representation of my journey with Crohn’s disease. For so many years I moved forward through life in the confinement of disease. Darkness was my companion, and I felt alone and different from those around me. But as my body healed on antibiotic therapy, I came back into the light of living a full and joyful life free of chronic disease.

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Grow Your Own Doctor

The following article was provided to Human Paratuberculosis Foundation by Dr. Judith Lipton. It was written in May 2015, but still remains relevant today. It is an excellent overview of MAP, and provides practical advice for patients who want to convince their doctor to treat their MAP infection.  HPF is grateful to Dr. Lipton for her contributions to the field and for providing this helpful article.

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