The Crohn’s Infection Turns One!
It doesn’t seem possible, but on June 21, 2016, The Crohn’s Infection site will officially be one year old. Yes, we grew it in development for months before it went live, but we officially released it to the world one year ago. Thanks for coming to the party!
How it All Began
As many of you know, The Crohn’s Infection was initially conceived to publicize the 2015 Chicago Symposium, where five presenters detailed the research supporting the treatment of Crohn’s disease as a mycobacterial infection. After a successful symposium, it became clear that the site needed to continue since patients needed a place to easily access the symposium video replays and a central location to find the research on Mycobacterium avium paratuberculosis (MAP). The decision was made to continue the site and follow the research on MAP and Crohn’s disease where it leads. We also thought it critical to connect patients who were interested in this emerging therapy.
The Year in Review
Thanks to the continued support of the symposium presenters, we’ve been able to publish 34 presenter blog articles, giving readers insight into the research efforts of those on the cutting edge. We’ve welcomed Dr. Gilles R.G. Monif and Dr. Robert E. Click to our site, and are grateful for their contributions. We’ve reviewed journal articles and video series, and recently honored Mothers and Fathers. In July, the third installment of our quarterly newsletter will be released. The MAP Gap provides short, accessible synopses of the latest research, newsworthy events in the field and a lighter side for those who need a laugh.
Seven pediatric and adult patients have graciously shared their real life experiences with Anti-MAP Therapy, in the hope that others can learn from their stories of struggle and success. If you have a story about your AMAT experiences, feel free to contact us to discuss your submission.
Dr. William Chamberlin answered many of your Frequently Asked Questions about AMAT, and the new For Clinicians page gives health care providers the information they need to get up to speed on the latest MAP research, plus it includes an exclusive analysis of the Selby study.
More recently, we’ve begun a series on the Traditional Treatment of Crohn’s Disease, hoping that this information in an easy to read format will empower patients to make the most informed decisions about their treatment. Our private Facebook group allows patients to connect and learn from each other in a supportive, positive venue.
Where Are We Going?
We hope to make our second year even better than our first by continuing to report on the latest research developments and growing our MAP community! More articles detailing specific medications in our Traditional Treatment of Crohn’s Disease series are soon to be released, and there will be a new series introduced in the second half of 2016.
Many research teams are beginning to look into a pathogenic cause of Crohn’s disease, and we expect that 2016 will bring some exciting new advances which move away from the immuno-suppressive, autoimmune model of IBD. We’ll be there, providing you this information in articles that are accessible to everyone.
Our First Contest!
The best gift you can give our site is your support. We certainly feel the love from all of you, and are glad you are here. To thank you for your dedication, we’re rolling out our first site contest! We think many Crohn’s disease patients would benefit from the information on our site, and we’d love to hear what you like about our site.
One randomly chosen winner will receive a one-of-a-kind 5x7 matted photograph suitable for framing taken by site presenter John Aitken. Not only is he an accomplished microbiologist, he is an excellent photographer, and New Zealand provides the perfect canvas for his talent. His landscape photography will add beauty to any room in your home or office. To enter:
- Share your favorite page or article from TheCrohnsInfection.org on a social media site by Friday, June 24, 2016 at 5:00 p.m. EST.
- Tell us which post you chose by emailing us at TheCrohnsInfection@gmail.com or by commenting in our Facebook group.
One entry per person (though you’re welcome to share more than one article!) The winner will be randomly chosen from all entries once the contest closes.
Thank you for your support throughout our first year. We’ve enjoyed hearing from all of you, and look forward to a partnership of education and healing in the future. This year we’ve learned how to walk. Join us as we learn how to run!