When I was diagnosed with Ulcerative colitis/Crohn’s disease six years ago, I was ignorant to the extent to which it would change my life. It altered all plans I had meticulously pieced together for a cohesive and creative existence within the world. The continual road of ups and downs not only affected me, they impacted my family, finances, and career. I knew people with UC/CD before I was diagnosed, yet had no idea of the daily struggles they faced, from immense pain and fatigue to brain fog to how your life stops when you have a flare. I lost my independence, financial nest egg, numerous jobs, relationships, and eventually myself.
#GivingTuesday is finally here, and Human Para has a great way to maximize your donation dollars to fund MAP research and make a difference in the lives of Crohn’s patients and people with MAP-driven diseases around the world. If you’re new to the #GivingTuesday movement, you may want to read our introductory post first.
On November 28th, starting at 8:00 a.m. EST, Facebook and the Bill & Melinda Gates Foundation will match funds donated to 501(c)(3) charities up to $50,000 per nonprofit, until the $2 million in matching funds run out. Facebook is also waiving the fees for all donations made on #GivingTuesday to nonprofits through their site.
We all know about Black Friday and Cyber Monday, but what is #GivingTuesday? In short – a great opportunity to fund some MAP research this holiday season!
Human Para’s #GivingTuesday campaign is hoping to raise $40,000 to fully fund our initial Joint Testing Study. All funds raised on #GivingTuesday will go directly to MAP research! If we raise the full amount needed for our initial study, we have more research projects waiting in the wings.
Human Paratuberculosis Foundation seeks to sponsor innovative research projects which will add to our understanding of MAP’s role in human disease. We encourage cooperative efforts among investigators, research centers, and other resources.
Human Para is pleased to announce our first research project in conjunction with 10 investigators from 5 different countries. This initial study seeks to confirm that Crohn’s disease patients have a significantly higher rate of MAP infection than individuals that do not have Crohn’s, and to compare more recent rapid culture methods from multiple laboratories. Our funding goal is $40,000 which will allow 210 samples (60 from Crohn’s patients, 150 controls) to be tested. MAP cultures and antibody studies will be performed in the laboratories of John Aitken, Timothy Bull, Irene Grant, Horacio Bach, Peilin Zhang and Raghava Potula.
by Judith Eve Lipton, MD
originally published June 7, 2015, revised October 24, 2017
I receive many letters from people around the world asking about treating Crohn’s disease with antibiotics, under the theory that Crohn’s disease is an infection caused by MAP, Mycobacterium avium subspecies paratuberculosis. I am a psychiatrist, not a gastroenterologist (GI), and not qualified to make specific suggestions about treating Crohn’s disease. I never treat any GI patients myself, and never did. I will never tell people specific doses or protocols for treating MAP because every patient is different. If you elect to learn more and follow this path, you will need your own local physician. I am only offering general information.