Patient Stories

Patient Stories

Many Crohn’s disease sufferers, some at the end of their treatment options, have had success with AMAT. Some experience complete healing that lasts for many years and some achieve remission. Others improve but do not reach full remission, and still others see no improvement. Like any medication, AMAT does not work for everyone. There are risks and side effects. It’s important to discuss these with your doctor and determine if AMAT may be the right therapy for you. More research on AMAT is necessary, and HPF seeks to provide funding for these critical research projects.

Thank you to the following patients who have courageously told their story in the hopes of helping all those suffering with Crohn’s disease.

 

Anti-MAP Therapy: A Pediatric Story

I am the father of two children, ages 10 and 13, who have been diagnosed with Crohn’s disease and are been treated with Anti-MAP therapy. I have successfully treated my children’s Crohn’s disease using AMAT and dietary modification. Continue reading…

 

3 Stories of Hope

What’s it like to walk a mile in a Crohn’s patient’s shoes? These compelling interviews provide a window into the battles patients and parents face on the road to healing; including Anti-MAP, surgery and hope for a cure. Continue reading…

 

David: Celebrating 10 Years of AMAT Remission

I have suffered for most of my life, from boyhood, with the symptoms of Crohn’s disease. However, I was not diagnosed with Crohn’s disease until years later in 1990, when I was 49 years old. Beginning in 1985, I had three major visits to local hospitals which were nearly fatal, and continued to suffer with many flare-ups from time to time. In 2005, I became non-responsive to any standard protocol being offered.  I was basically at death’s door without hope. My wife, also feeling desperate, immediately began a process of searching online and printing out any article that seemed credible for us to weigh and study. Continue reading…

 

Elle: Skiing Again After AMAT Success

This story is one of pain, as all Crohn’s stories must be, but it is also about fear. Fear of the unknown, fear of the known.  If you are a patient thinking of trying Anti-MAP Antibiotic Therapy (AMAT) but are afraid, read this. If you are a physician wondering if you should prescribe the AMAT drugs and worried about it, read this. This story has a happy ending. You should hear it. Continue reading…

 

 

Jay: Engineering an Anti-MAP Victory

Growing up, I was a normal boy, or so I used to think. When I was 14 years old, a doctor noticed that while I was continuing to grow taller, I had lost ten pounds in six months. Over the next two and a half months, I had various tests. By the time I was diagnosed with Crohn’s disease, I was very skinny and weighed only 100 pounds. The colonoscopy showed that I had pinpoint sized ulcers everywhere. In a desperate bid to avoid biologic and immunosuppressant therapies, my parents searched for an alternative treatment for his Crohn’s disease. Continue reading…

 

 

Jen: AMAT success after 25 years of Crohn’s disease

The Statue of Liberty gave me Crohn’s disease, or so my mother joked.  Although I now know better, my Crohn’s disease first flared after I got the flu on a family vacation to New York City. After suffering for 25 years, Dr. Chamberlin helped me to overcome the symptoms and experience long term remission for the first time. Continue reading…

 

 

 

Roy M: My AMAT Success

I have had primary, recurring Crohn’s disease symptoms for the last 32 years. I was first diagnosed with Crohn’s disease in November 1983. There were few treatment options at the time. After multiple surgeries, medications, and even cancer treatments, my Crohn’s disease was still not under control. With nothing left to try, I began the Anti-MAP antibiotic therapy (AMAT) in the fall of 2014. Continue reading…

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